Assessment of Caregivers and Their Children With Cancer Regarding Information Provided by Healthcare Teams: Advancing Stages Toward the Creation of a Structured Education Program at the National Level
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<p>Introduction: The dissemination of information to caregivers of pediatric cancer patients in Chilean hospitals is now sporadic and contingent upon available time, underscoring the need for a systematic education program. This study assesses caregivers’ perceptions of the information provided by healthcare teams to support the development of a national education program tailored to their needs. Methods: A descriptive, prospective, multicenter study was conducted from June 2021 to March 2022 across six public hospitals in Chile. The study included caregivers of children undergoing cancer treatment. Caregivers completed a survey assessing the education received and their preferred educational methods. Data were analyzed using STATA 18 and Graph Pad 6.0, with qualitative responses analyzed through an iterative coding process. Results: Of 173 respondents, 94% rated the education received as very good or good. While 51% felt well-informed at hospital discharge, 28% desired more information. Caregivers preferred information from healthcare teams (88%), websites (55%), and written materials (51%). Significant differences were found in preferred educational content based on cancer type and the time elapses since diagnosis. Conclusion: Caregivers generally rated the education provided positively but expressed a need for more structured and targeted information. The findings inform the design of a national education program, emphasizing the need for tailored content and improved communication strategies to enhance caregiver support.</p>
Keywords
cancer, caregivers, children, education, oncology, parents, Caregivers/education, Prospective Studies, Follow-Up Studies, Humans, Middle Aged, Patient Care Team, Child, Preschool, Male, Neoplasms/therapy, Adolescent, Female, Adult, Surveys and Questionnaires, Chile, Child, Health Education, SDG 3 - Good Health and Well-being