Assessment of Caregivers and Their Children With Cancer Regarding Information Provided by Healthcare Teams: Advancing Stages Toward the Creation of a Structured Education Program at the National Level

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dc.coverageDOI: 10.1002/pbc.31577
dc.creatorDe la Maza, Verónica
dc.creatorFierro, Virginia
dc.creatorFacusse, Carolina
dc.creatorCarvajal, Daniela
dc.creatorPavez, Tiare
dc.creatorMéndez, Karen
dc.creatorBarra, María
dc.creatorTorres, Juan P.
dc.creatorTorres, Daniela
dc.creatorMoscoso, Paz
dc.creatorSantolaya, María
dc.creatorParis, Claudia
dc.date2025
dc.date.accessioned2025-11-18T19:46:22Z
dc.date.available2025-11-18T19:46:22Z
dc.description<p>Introduction: The dissemination of information to caregivers of pediatric cancer patients in Chilean hospitals is now sporadic and contingent upon available time, underscoring the need for a systematic education program. This study assesses caregivers’ perceptions of the information provided by healthcare teams to support the development of a national education program tailored to their needs. Methods: A descriptive, prospective, multicenter study was conducted from June 2021 to March 2022 across six public hospitals in Chile. The study included caregivers of children undergoing cancer treatment. Caregivers completed a survey assessing the education received and their preferred educational methods. Data were analyzed using STATA 18 and Graph Pad 6.0, with qualitative responses analyzed through an iterative coding process. Results: Of 173 respondents, 94% rated the education received as very good or good. While 51% felt well-informed at hospital discharge, 28% desired more information. Caregivers preferred information from healthcare teams (88%), websites (55%), and written materials (51%). Significant differences were found in preferred educational content based on cancer type and the time elapses since diagnosis. Conclusion: Caregivers generally rated the education provided positively but expressed a need for more structured and targeted information. The findings inform the design of a national education program, emphasizing the need for tailored content and improved communication strategies to enhance caregiver support.</p>eng
dc.identifierhttps://investigadores.uandes.cl/en/publications/e4ac2922-8a17-40b9-bec3-6a3868eb9b30
dc.identifier.urihttps://repositorio.uandes.cl/handle/uandes/54467
dc.languageeng
dc.rightsinfo:eu-repo/semantics/restrictedAccess
dc.sourcevol.72 (2025) nr.4 p.e31577
dc.subjectcancer
dc.subjectcaregivers
dc.subjectchildren
dc.subjecteducation
dc.subjectoncology
dc.subjectparents
dc.subjectCaregivers/education
dc.subjectProspective Studies
dc.subjectFollow-Up Studies
dc.subjectHumans
dc.subjectMiddle Aged
dc.subjectPatient Care Team
dc.subjectChild, Preschool
dc.subjectMale
dc.subjectNeoplasms/therapy
dc.subjectAdolescent
dc.subjectFemale
dc.subjectAdult
dc.subjectSurveys and Questionnaires
dc.subjectChile
dc.subjectChild
dc.subjectHealth Education
dc.subjectSDG 3 - Good Health and Well-being
dc.titleAssessment of Caregivers and Their Children With Cancer Regarding Information Provided by Healthcare Teams: Advancing Stages Toward the Creation of a Structured Education Program at the National Leveleng
dc.typeArticleeng
dc.typeArtículospa
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